Hey guys!
So as I told you in my last article I have the syndrome of Marfan.
Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. It also plays an important role in helping the body grow and develop properly.
Because connective tissue is found throughout the body, Marfan syndrome can affect many different parts of the body, as well. Features of the disorder are most often found in the heart, blood vessels, bones, joints, and eyes. It can be life threatening.
The features that I have are in my heart, blood vessels, bones and that's it.
Because of the Marfan syndrome I'm very tall.
I also have scoliosis.
Because I have scoliosis I had to wear a brace for two years.
I also have a hole in my chest, which you can't really see because I'm a girl (hihihi)
My hands and fingers are very tall and thin, i'm very flexible and I have flat feet.
Because of all this I need to go to the hospital every year for a check to see if my aorta is still good or not.
If you have any questions please just ask me :)
Byee,
Milou
